SHUNTVERSARY: 3 MONTHS
I’m not going to get too excited but… TODAY IS ELLISA’S THREE MONTH SHUNTVERSARY! THAT’S 90 DAYS WITHOUT SHUNT PROBLEMS!!! We love you sissy! – – – – – – – – – – – - And I promise, you won’t be hearing from me about this again until we hit her 1 year Shuntversary. [...]
My Hydrocephalus Vows
I’ve been inundated with hydrocephalus lately. I FINALLY found a similar story to Ellisa’s (more on that to come), a friend of mine has a daughter struggling with hydro as I write, and I’m starting to get random comments on this blog from adults with their own hydro issues. All these things being aligned right [...]
Ellisa Jumps!
This is a big deal around here. I’ve always known she would do it eventually but after she passed the two-year mark without jumping, I started to wonder if something was off and she just wouldn’t have it in her. Dare I doubt Ellisa. EVER. She started jumping last week. Notice how much more refined [...]
Ellisa’s Neurologist: Visit 3
After more than a year and a full MRI done in November, I thought it was time to visit Dr. Kane, Ellisa’s neurologist, to assess the official report of her brain damage from birth (listeria/bacterial meningitis/grade III bleeds). Boy, I’m glad I did. Peace of mind goes a long way. As a reminder, I was [...]
Shuntversary: 2 months
Wow, did another month go by fast. And Ellisa has been a happy playful toddler the whole time without ANY shunt scares this last month. Yippie! I should add that Ellisa has been doing great this last month too. She started jumping, can count to 13, has started singing almost complete songs, and is on [...]
VP Shunt Malfunction #4
I can’t believe I have another post about another malfunction. I feel like there is no end in site but I’m happy to report Ellisa’s gone more than a month without a malfunction, so things are looking better. And sorry this is coming so late. Malfunction #4 happened January 8th (surgery). I wrote this soon after [...]