My Hydrocephalus Vows
I’ve been inundated with hydrocephalus lately. I FINALLY found a similar story to Ellisa’s (more on that to come), a friend of mine has a daughter struggling with hydro as I write, and I’m starting to get random comments on this blog from adults with their own hydro issues. All these things being aligned right [...]
VP Shunt Malfunction #3: Day 12–16
Day 12: Ellisa woke up a bit earlier this morning since she didn’t nap the day before. Once breakfast was over with, Papa Tom came to visit with breakfast tacos in hand. Yippie. Of course, Ellisa had her share of our breakfast tacos too. After her second breakfast, we went for a walk when I [...]
VP Shunt Malfunction #3: Day 4 & 5
I’ve decided to continue VP Shunt Malfuction #3 since we have found out that we will be here at least 12 more days and I’m sure there will be lots to report and remember from now until then. Let’s do a quick recap: Day 1: Urologist visit, admit to hospital that evening Day 2: MRI [...]
VP Shunt Malfunction #3: The first days
We’re back. I haven’t even had time to finish writing and posting about Ellisa’s 2nd VP shunt revision from last week when we head back to Dell Children’s for a third malfunction. Are you kidding me? Here’s a quick recap of where we are at: Ellisa just didn’t seem to be getting better or acting [...]
VP Shunt Malfunction #2
I’m ambivalent about our latest shunt revision experience with Ellisa. I was sure over a month ago that Ellisa was having another shunt malfunction but it took four ER visits, two admissions, a whole bunch of testing (check out my list here), and four full days of Ellisa NOT eating or drinking for our team [...]
Hospital Visit #6: Getting Comfortable
I’m sitting on the hospital guest “bed” watching HGTV, snacking on Tiff’s Treats (Thx Mary Elizabeth!), blogging with my new wireless keyboard (I treated myself thanks to Grandma Vicki sending some birthday spending money), and waiting desperately for my little girl to wake up and WANT to eat or drink. I’m at the end of [...]